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Home » Support Groups » Seeking Contact

Seeking Contact

 

The GSNV works hard to connect individuals and families interested in sharing their experiences and insights with others.

People interested in contacting others "in the same boat" can contact us to advertise their details through the GSNV and we will assist in making connections.

 

Condition

Family Information

4q34 deletion The family of a young child would like to speek to another family that has a child with the same condition.
Arthrogryposis Looking for adults with this condition.
Autosomal Dominant Osteopetrosis The mother of a young child would like to speak to another family that has a child with this same condition.
Bullous pemphigoid The mother of a young child would like to speak to another parent who has a child with this same condition

Cat Eye Syndrome / 
Schmid Fraccaro Syndrome

Looking to connect with other young people with this condition
Monilethrix Looking to connect with others or families with this condition

Parry Romberg syndrome

Looking to connect with others or families with this condition
Succinic semialdehyde dehydrogenase deficiency (SSADH) Looking to connect with others or families with this condition
Polymicrogyria The parents of a child would like to speak to other parents that have a child with this condition.
Pyrrole disorder The mother of a teenage son would love to have contact with another family who have a family member diagnosed with this condition
Renpenning syndrome Looking to conect with a family who have a child with this condition
XYY Looking to conect with a family who have a child with this condition

 

In addition, we also have a database of individuals with genetic conditions who are interested in peer support contact. Contact us if you are interested in connecting with others.

We are committed to your privacy.

No details will be published without your consent, and those that are published will not include personal contact details. These contact details will remain on our website for three months.

We will obtain consent from both parties before connecting individuals and families. 

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